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22q11.2 Deletion Syndrome South Africa | About Us About Us – 22q11.2 Deletion Syndrome South Africa

Our Company

  • Name: The 22q11.2 Deletion Syndrome Foundation South Africa NPC (“the Foundation”)
    Registration number: K2015/299095/08
  • We are a non-profit company, incorporated by parents of children who have been diagnosed with 22q11.2 deletion syndrome (“22q11.2”) (also known as Velo- Cardio-Facial Syndrome or Di-George Syndrome).
  • Our objective is to drive awareness and education around 22q11.2 in South Africa.
  • We obtain information from and liaise with with the International 22q11.2 deletion syndrome community.

Objectives:

    • To provide support to families affected by 22q11.2 in SA
    • Actively drive awareness about 22q11.2 in SA
    • Source relevant information regarding 22q11.2  from the international 22q11.2 community and share it with families and healthcare professionals in SA
    • Connect affected families with healthcare professionals that have an interest in and knowledge about 22q11.2
    • Raise funds in order to arrange and facilitate conferences with local and international 22q11.2 experts presenting

About a Non-Profit Company

It means a company, the income and property of which are not distributable to its incorporators, members, directors, officers or persons related to them except to the extent permitted by the Companies Act 71 of 2008 (as amended). The object of the company must be either i) a public benefit object or ii) an object relating to one or more cultural or social activities, or communal or group interests.

Our Mission

To educate ourselves and others about 22q11.2 in order for affected children to be correctly diagnosed, treated and understood.

Sponsorships / Donations

Should you wish to sponsor an event or make a donation, please contact us

Founders and Directors

Benita Penfold
Dirk Uys
Derek Landau
We are parents of children affected by 22q11.2 deletion syndrome.