- Name: The 22q11.2 Deletion Syndrome Foundation South Africa NPC (“the Foundation”)
Registration number: K2015/299095/08
- We are a non-profit company, incorporated by parents of children who have been diagnosed with 22q11.2 deletion syndrome (“22q11.2”) (also known as Velo- Cardio-Facial Syndrome or Di-George Syndrome).
- Our objective is to drive awareness and education around 22q11.2 in South Africa.
- We obtain information from and liaise with with the International 22q11.2 deletion syndrome community.
To educate ourselves and others about 22q11.2 in order for affected children to be correctly diagnosed, treated and understood.